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Nancy Spaeth's story
I had just started 7th grade in September 1959 when brushing my thick wavy blonde hair became difficult. My urine became brown. The diagnosis was that I had Bright’s Disease, and it was harming my kidneys.
In 1965, I went off to college at the University of Arizona in Tucson, but by February 1966, I had become too sick to stay in school.
I returned home and continued college at the University of Washington, and then transferred to Seattle University, which was just three blocks from the Kidney Center. I also began my interviews with the Admissions and Policy Committee at the Seattle Artificial Kidney Center (which later changed its name to Northwest Kidney Centers). Because this was the first out-of-hospital dialysis center in the world, they only had about two dozen beds. So, the committee looked for people who could recover and go on to work or be contributing members of society. Those chosen also had to have insurance or the money to pay for dialysis.
At the time, my sister-in-law reminded me that I might not be chosen, but I was 18 and the implication of death never really occurred to me.
I was lucky enough to be chosen, and I got a Scribner shunt to start dialysis. While on dialysis, I often volunteered for research studies, thinking that anything the doctors learned would benefit me as well as others. I was planning for the future, my future.
Since that time, I have received four transplants – the last one still healthy after 12 years! In between I have experience just about every type of dialysis treatment, from in-center, to home hemo, to peritoneal dialysis.
The care I got has given me the chance to have a career first as a school teacher and then as a nurse. I enjoy educating patients and renal professionals about the history of dialysis and rehabilitation for dialysis patients.
More importantly, I have been able to be a mother to my children, born during my first transplant, and I am quite amazed and feel blessed to have lived to hold my grandchildren.
All I ever wanted was a normal, decent life with children and the opportunity to give back to society at least as much as I have been given. I continue to strive toward that end.